Communicator. Ivan is an 18-year-old young man. The Homecoming King! Then, he danced the night away! S a v e t h e D a t e s... 5

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1 Communicator Issue Date: 12/3/12 Frequency: 3x/Year Issue #: 3-Winter San Diego Regional Center~A Service of San Diego-Imperial Counties Developmental Services Inc, 4355 Ruffin Road, San Diego CA The Homecoming King! M e s s a g e f r o m t h e D i r e c t o r. 2 F o u n d a t i o n H o l i d a y F u n d r a i s e r D r i v e F i r e S a f e t y i n t h e S e a s o n.. 4 E a t i n g H e a l t h y D u r i n g t h e H o l i d a y s H G H L i f e P l a n n i n g P r o j e c t.5 T h e a t r e a n d S i n g i n g G r o u p.5 S a v e t h e D a t e s R e c r e a t i o n a n d L e i s u r e o n t h e S D R C W e b s i t e U C P A s s i s t i v e T e c h n o l o g y C e n t e r C l i e n t P r o f i l e s C e l e b r a t i n g O u r S u c c e s s. 6-7 N o r t h C o u n t y & E a s t C o u n t y S u p p o r t G r o u p s F D D R u n W a l k & R o l l C a l e n d a r o f E v e n t s T h e W e b P a g e T r a d u c c i ó n e n E s p a ñ o l Ivan is an 18-year-old young man with Down syndrome. He is always happy and has a big smile that lights up a room. He is full of energy and enjoys listening to music, dancing and going for walks. He lives with his parents, gets along well with his siblings and likes spending time with his family. Ivan is already bilingual (Spanish/English) and is always ready to learn new things. He enjoys and loves going to school. Ivan attends Crawford High School where he is popular among his peers. This year, he was honored to be nominated for homecoming king. Then, he danced the night away! The other boys who might have been king bowed out when they heard that Ivan had been nominated. One of his classmates shared that he felt it would be right for Ivan to win and said, He s outgoing. He s friendly. He deserves it. Ivan s smile and pride best describe how much being homecoming king means to him. He was crowned during halftime at Crawford High School homecoming game. His reign as homecoming king continued throughout Saturday night s homecoming dance. He was dressed in a black tuxedo and rode around the field in a convertible with the homecoming queen at his side, waving to hundreds of cheering people holding signs that read, We love Ivan. His smile could only be matched by the bright California sun.

2 Message f r o m t h e D i r e c t o r Carlos Flores Executive Director Our process of strategic planning is not an academic exercise; it is critical to the viability of our agency and the effective fulfillment of our mission. Knowing where you re going is essential before you take the first step. Choosing a clear direction is even more important during this difficult time of economic uncertainty and considerable change. As we chart our course and navigate over difficult terrain our compass is steadfast in the pursuit of our mission: To serve and empower persons with developmental disabilities and their families to achieve their goals with community partners. We began our strategic planning with a candid assessment of the San Diego Regional Center s strengths and weaknesses as well as the external opportunities and threats to our system. We matched our strengths to the opportunities while addressing our weaknesses and external threats and developed the following three strategic directions: To identify and communicate the benefits of San Diego Regional Center to broaden and strengthen our support base. To improve our partnership relationship with clients and families and provide access to quality and appropriate services and supports. To provide a greater emphasis on staff training and professional development. In the process of asking many stakeholders about the benefits associated with the San Diego Regional Center we were able to capture a profound appreciation for our service delivery system from clients, parents, employees, service providers and community partners. A white paper was generated from these reports, and other sources of information, to serve as the basis for communicating the value of the San Diego Regional Center. In a recent client and family survey outstanding levels of satisfaction were reported regarding the quality and appropriateness of services delivered by the San Diego Regional Center. Ranging from 83% to 96% of the clients and family members reported that they were treated with respect and courtesy, were provided with relevant information, and their Individual Family Service Plans and Individual Program Plans included valuable services and supports. Based on a recent employee satisfaction survey, we are fortifying our professional development and training. To ensure consistency in staff competency a learning management system is being created that will provide a coherent and comprehensive training program with both online and instructor led training. In response to State Budget Act trailer bills, our next important goal is to improve the quality and availability of services and supports for our complex clients for whom it has been historically difficult to find resources to meet their needs. The recent changes in laws and regulations have made this proactive initiative more important than ever. During a time of great uncertainty, the San Diego Regional Center continues to strategize how to ultimately best serve persons with developmental disabilities to live productive and satisfying lives as valued members of their communities. 2 communicator winter

3 Foundation for Developmental Disabilities Launches the Holiday Fundraising Drive CAN YOU HELP? As we prepare to celebrate the upcoming holiday season, we recognize the many gifts that we have enjoyed this past year. We also recognize others who may not have been as fortunate during these challenging economic times. The Foundation for Developmental Disabilities works throughout the year to provide support for children and adults with intellectual disabilities, cerebral palsy, autism, epilepsy and other developmental disabilities to live more full, productive and satisfying lives. For example, The Foundation is working to expand the options for higher level education for individuals with developmental disabilities. The Foundation supports the College Bound Program, in collaboration with UCP, San Diego Regional Center, and Area Board XIII, which offers training for college life for people with developmental disabilities. In the words of Moises Baron, University of San Diego Staff: This program is unique in that it provides an opportunity for individuals with disabilities to experience college life and learn about services, supports, and the skills necessary to succeed. Our institution was able to witness first hand its positive impact on the participants and their families. For many of them, this program kindled the realization that a postsecondary education could be an option in their future. A parent commented: The fact that this week has opened his eyes that college may be possible gives me great hope as a parent. One of the clients who participated had this to say, Thank you for the chance to go to college, I really appreciate the chance to attend and learn. In addition, the Foundation continues to provide assistance with important, urgent and emergency needs that are not funded elsewhere such as creating affordable housing opportunities; training opportunities in health, safety, personal growth and self-advocacy; and scholarships for students who are studying in preparation to enter the field of developmental disabilities in San Diego and Imperial counties. Here is what one recipient of a Foundation Scholarship wrote: I was both surprised and honored to receive the scholarship from your organization I thank you for investing in my future and I look forward to beginning a career that can serve those with developmental disabilities. When we all have so much to be thankful for, we hope it is gratifying to read how much your past contributions have meant. Your support makes a difference in the lives of children and adults with developmental disabilities and their families. We thank you and hope you will consider supporting the Foundation in your holiday giving this year. Please feel free to contact our office at (858) or visit our website at for more information or to make a donation. To make a donation by check, please make payable to FDD, and mail to: Attn: Foundation for DD, 4355 Ruffin Rd., San Diego, CA We appreciate your support! Foundation for Developmental Disabilities 4355 Ruffin Road San Diego, CA The San Diego-Imperial Counties Developmental Services Foundation is a 501(c)(3) nonprofit organization and contributions are tax deductible as allowed by law. The Foundation is looking for a few good people to serve on the Board of Directors. If you are interested please contact us at: Foundation for Developmental Disabilities 4355 Ruffin Road, San Diego, CA (858) communicator winter

4 Fire Safety in the Season for Sharing Fire safety is especially important during the holiday season. Here are some tips to keep your family safe and enjoy the holidays. PREVENTING CHRISTMAS TREE FIRES Live Christmas tree fire hazards: Special fire safety precautions need to be taken when keeping a live tree in the house. A burning tree can rapidly fill a room with fire and deadly gases. When choosing a tree, check to make sure the needles are green and hard to pull off the branches. The needles should not break if the tree has been freshly cut. The trunk should be sticky to the touch. If many needles fall off, the tree has been cut too long, has dried out, and is a fire hazard. Do not place your tree close to heat because heat will dry out the tree causing it to burn. Do not put your live tree up too early or leave it up for longer than two weeks. Keep the tree stand filled with water at all times. Artificial Christmas trees: If you are using a metallic or artificial tree, make sure it is flame retardant. HOLIDAY LIGHTS Maintain your holiday lights: Inspect holiday lights each year for damaged wires. Use only lighting listed by an approved testing laboratory. Do not overload electrical outlets: Connect strings of lights to an extension cord before plugging the cord into the outlet. Make sure to check the wires they should not be warm to the touch. Do not leave holiday lights on unattended. HOLIDAY DECORATIONS Use only nonflammable decorations: All decorations should be nonflammable or flame-retardant and placed away from fireplaces, candles and heat vents. Never put wrapping paper in a fireplace: Wrapping paper is extremely flammable and may result in a very large quick burning fire that shoots off dangerous sparks and embers. CANDLE CARE If you use candles, make sure they are in stable holders and place them where they cannot be easily knocked down. Never leave the house with candles burning. Never put lit candles on a tree: Trees can easily catch on fire whether they are fresh or artificial. Finally, as in every season, have working smoke alarms with fresh batteries. Know when and how to call for help. And remember to practice your home escape plan. Eating Healthy During the Holidays The holiday season is just around the corner. The days are shorter, people are indoors more and not as active. There are holiday parties, dinners and social events. It is easy to gain weight during this time of year. Remember that you have control over yourself and what you put in your mouth. It is easier to keep the pounds off than trying to burn the inches off afterward. x Here are some simple suggestions on how to eat healthier this year. The first is to snack but, instead of eating a chocolate bar, have baby carrots or a piece of fruit. Eating small meals frequently helps avoid hunger cravings that lead to impulsive eating. Before heading out to a social engagement, nibble on some veggies. Drinking water helps a person feel full and resist the urge to eat. x Being conscientious and mindful of what you are eating helps you slow down the pace of your eating. It takes time for the stomach to tell your brain that it is full. Concentrating on what you are eating and thoroughly chewing the food, helps you feel satisfied with what you have eaten and avoid overeating. x If you do a lot of eating out, it is easy to consume too many calories in a single meal. Remember that eating is not a competition to see how fast you can eat or how many plates of food you can finish. x Be wary of high calorie foods (dips, chips, cheeses, sauces and gravies, sweets, fruit juices, alcoholic beverages and nuts). Remember portion control. Divide your plate into quarters, a quarter for each food group proteins, grains, veggies and fruits. You can have a serving of dairy on the side. x Don t feel obligated to eat an additional helping or to scrape the plate clean. Eat until you are satisfied and stop. People respect a person who is in control of themselves and this includes their eating habits. In the long run, you will be happier with yourself and so will your body. 4 communicator winter

5 creating a plan for a Better Tomorrow Home of Guiding Hands is offering a series of workshops for parents and relatives of people with developmental disabilities or other challenges. The Life Planning Project: A Family Workshop Series consists of 6 workshops: Why Plan- Getting Started, Building Relationships & Skills, Work, Retirement & Leisure, Housing Options, Legal Issues and Setting Goals. The series, which includes all six workshops, will be offered in various areas of the county including East County, North County and Southbay. In Southbay, the series will be offered in both English and Spanish. It will also be offered in Imperial County in the Fall of Reservations are necessary as space is limited. Contact Wendy at wendy@guidinghands.org or Theatre and Singing Group for Teens and Adults Positive Action Community Theatre (PACT) teaches life skills to children, teens, and adults with disabilities through inclusive performing arts programs. The winter 8-week sessions begin in Encinitas on Saturday, January 19, 2013, and includes an improvisational theatre for teens and adults, and also a new singing group for teens and adults. PACT also offers a children s theatre program in the summer. All programs consist of a mix of peers with and without disabilities. Scholarships are available. According to PACT, parent feedback is that their programs greatly help children and young adults with disabilities come out of isolation, find their voice and share their gifts. We all benefit. for more information info@pacthouse.org Save the Dates! MARCH 23, th Annual Involved Exceptional Parents Day Conference Handlery Hotel, San Diego Strength in Partnerships: Building Stronger Relationships in the Home and Community Workshops will be offered in English and Spanish. Contact: Sandra Bishop, sandra.bishop@sdrc.org MAY 10-12, 2013 San Diego People First Self-Advocacy Conference, Mission Valley Marriott San Diego People First: Then, Now and Forever Contact: Debbie Marshall June 8, 2013 Foundation for Developmental Disabilities, Run Walk & Roll Liberty Station, San Diego Contact: Kamaria Allen, kallen@sdrc.org There are many social and recreational activities in our community for children and adults with developmental disabilities, but finding those resources can be a challenge. Service coordinators are often notified about exciting activities that are available to our clients but getting the word out to everyone is difficult. The Recreation & Leisure Committee of the San Diego Regional Center is excited to announce a new project that will allow better access to this information for a wider range of people. Starting in January 2013, you will be able to find a compilation of social/recreational activities on our website. Just go to and click on the Resources 6162 Mission Gorge Road, #F San Diego CA (fax) sdatc@ucpsd.org Recreation and Leisure on the SDRC Website Assistive Technology Center Open Lab Schedule OPEN LABS are times when individuals may explore a variety of augmentative communication devices, software and computer access equipment. Staff attention for individual support is limited during lab hours due to number of participants. For North County (Escondido) Open Lab Schedule, call and Support tab, and then on Recreation. We will be collecting and posting exciting activities offered in the community which will be updated on a quarterly basis. Currently, if you visit this page, you will find links to the Recreational Resource Guide in both English and Spanish, calendars for our Adult Social Network Groups in Central San Diego and East County, and a link to the San Diego Park & Recreation Therapeutic Services Calendar (updated quarterly). We are excited to be able to gather all of this information into one location that can be easily located and accessed by our clients! communicator winter

6 celebrating our success Mirian Mirian is a brave and positive 14-year-old who is a beacon of hope, perseverance and determination. In 2006, Mirian was diagnosed with a cancerous tumor in her left thigh. After chemotherapy and a medication regimen failed to defeat the tumor, doctors determined that they had to replace Mirian s thigh with a thigh prosthetic. After surgery, during physical therapy while attempting to walk without the use of a walker, Mirian s prosthetic broke prompting doctors to decide that her leg had to be amputated. Prior to her second surgery, Mirian s only question to the doctor was, Will I be able to walk again without a walker? The doctor responded, Yes you will. With these words of encouragement, Mirian was willing to let the doctor proceed with the surgery. Throughout her ordeal, Mirian has maintained an incredible positive attitude. It is this positive attitude that has gotten her through. Amazingly, Mirian often calmed others who were worried about her. Mirian comforted her mom, telling her not to be sad and that everything will be okay. Since her amputation, Mirian is doing very well. Her body is now cancer free. She is walking short distances with her new prosthetic leg. With the help of Access Medical, she is in the process of receiving a new pink motorized wheelchair to help her move around at school, for when she goes on outings with her mom, and to make her more independent. According to Mirian s SDRC service coordinator, With such hurdles in life, Mirian is the most positive person I have ever met. Keita Keita, a tech-savvy 14-year-old, benefits greatly from using an ipad at both school and home. Several years ago, Keita didn t have an ipad of his own. Very often, he borrowed his brother s. One day, unintentionally, Keita dropped his brother s ipad and it broke. His father realized that not only did his brother need a new one, but Keita needed an ipad or some kind of computer-type device of his own, and that was expensive. Keita and his dad took a trip to the Apple Store and dad asked, Do you have an indestructible device that would be better for my son? He was told that they didn t have anything indestructible. After some discussion, the store manager approached and suggested they send an to Steve Jobs directly. Keita s dad did send an to Mr. Jobs stating that he was the father of a child with autism and explained that he was looking for a replacement ipad or similar device that would be less fragile. Much to his surprise, he received a response from Mr. Jobs. The two of them had a conversation by about the importance of creating a less fragile device. They discussed making a case that would make the ipad and similar devices stronger to be more appropriate for people with disabilities. Mr. Jobs thanked Keita s dad for his input and suggestions. He also sent Keita a new ipad that he uses all the time. Keita, his family and teachers are grateful for Mr. Jobs kindness. Alonso Alonso is an 8-year-old boy who has autism. He is cared for and supported by his loving mother and family. Last May, Alonso s teacher at Jamacha Elementary School wrote a letter to East County Posse and in June, he was chosen to be a recipient of an ipad. Now, Alonso has the opportunity to use an ipad at school and at home. The device allows him to communicate his wants and needs, which reduces the inappropriate and disruptive behaviors he previously exhibited in his classrooms. This is a big step for Alonso and his family. He and his mother are extremely appreciative for the opportunity for Alonso to improve his communication skills. This is a wonderful example of how organizations and families can work together to make our community a better place for all. (East County Posse aims to help the people of East County help themselves, offering assistance to those who might not qualify for other aid programs. The Posse fills a special niche in the East County community.) 6 communicator winter

7 celebrating our success North County Support Group for Spanish Speaking Parents East County Sibling Support Group FDD Run Walk & Roll 5K/1 Mile Grupo de Apoyo Entre Padres is a support group for Spanish speaking parents and SDRC clients that meets twice each month on Thursday evenings at the SDRC San Marcos office. This group, led by service coordinators Claudia Canseco, Noemi Kelsey, Bernard Monterroso and Ana Silva, provides support to parents and helps empower them with current information and resources. It is an opportunity for parents to learn more about their child s disability so they can provide appropriate support and access resources they need. Upcoming activities include Parentto-Parent Training pertaining to the stages of grief and loss; Conservatorship Training; and a Legal Aid presentation on Immigration Laws and Parent Rights. Through this support group, Spanish speaking parents have become more educated about supporting their child and more active in the community. For example, this group organized their own Autism Walk team. They have created their own support network, sharing resources and information with each other to better support their children and families. For more information, call Growing up with a brother or sister with special needs is often difficult. Siblings can feel left out or jealous of the attention their brother or sister receives from parents and other family members. Being the sibling of a child with special needs also has positive aspects such as increased maturity, increased tolerance of others and enhanced communication skills. It is important to know that siblings want to have a positive relationship with their brother or sister. They also have a lifelong need for information in order to understand their sibling s disability. SDRC offers sibling groups that provide an opportunity to meet and talk with other siblings who deal with similar feelings and situations. Besides talking about issues such as bullying and having to look after their brother or sister, they can share good times, too. Sibling groups provide activities to: Acknowledge feelings and let them know that their feelings are normal and similar to those of other siblings. Learn coping strategies and self-help techniques for dealing with difficult situations and feelings. Enhance knowledge about their brother or sister s disabilities and the professionals and services who work with their families. The East County Sibling Support Group is held on the third Wednesday of the month at the SDRC Santee office. Call Maria Lizaola at for more information. The Foundation for Developmental Disabilities, serving San Diego and Imperial counties, is a resource for individuals with developmental disabilities and their families. Support is provided when needed services are not available from public or private resources. The Foundation held a Run Walk & Roll 5K/1 mile event to help raise funds in June at Liberty Station, San Diego. There was a total of 258 attendees, and the Foundation raised approximately $10,000. All proceeds went to the Foundation programs that provide support to those in need of assistance in emergency or urgent situations. Top fundraisers received prizes and everyone received a medal for participation. The event was successful and the planning team did an excellent job of organizing this fun event. Kamaria Allen stated, It takes a lot of work but we had a good team. In photo: East County Familias Unidas participated as a team (Spanish Speaking parent support group) communicator winter

8 CALENDAR of events Education SAN DIEGO REGIONAL CENTER TRAINING CALENDAR MARCH 23, TH ANNUAL INVOLVED EXCEPTIONAL PARENTS DAY CONFERENCE HANDLERY HOTEL, SAN DIEGO Strength in Partnerships: Building Stronger Relationships in the Home and Community Workshops will be offered in English and Spanish. Contact: Sandra Bishop, MAY 10-12, 2013 SAN DIEGO PEOPLE FIRST SELF-ADVOCACY CONFERENCE ~ MISSION VALLEY MARRIOTT San Diego People First: Then, Now and Forever Contact: Debbie Marshall, CHILDREN & YOUTH ADVOCACY PROJECT CLINIC Provides direct legal services to transitional-aged students (16 22) with disabilities and their families in the areas of Individualized Education Programs (IEP s) and Transition Plans, AB2726 matters and other transitional related issues. Contact: Legal Aid San Diego Ext SPECIAL NEEDS TRUST FOUNDATION Understanding Social Security/Special Needs Trusts Contact: for dates and location. Offered by the Special Needs Trust Foundation. Support Groups Autism AUTISM SOCIETY OF AMERICA San Diego Chapter Contact: Imperial County Contact: EXCEPTIONAL FAMILY RESOURCE CENTER Autism Parent Support Group For parents of young children on the autism spectrum. Contact: Cerebral Palsy UNITED CEREBRAL PALSY OF SAN DIEGO COUNTY For parents of children, newborns to ten years old, with cerebral palsy. San Diego. Contact: Mary Ann or Rhonda info@ucpsd.org Down Syndrome EXCEPTIONAL FAMILY RESOURCE CENTER Support for Parents of Children with Down Syndrome In association with Down Syndrome Association Contact: San Diego North County Imperial County Epilepsy EPILEPSY FOUNDATION Contact: Sasha sasha@epilepsysandiego.org LEARNING DISABILITIES ASSOCIATION School Problems Workshop: Teaches parents how to navigate the special education system and secure needed services and placement. Not Really a Bad Kid: Teaches parents how to identify behavior problems at school and secure needed services and supports. IEP Goals Workshop: Teaches parents how to help develop good IEP goals and secure needed services. IEP Eyes Workshop: Teaches parents how to do a classroom observation, monitor service delivery and evaluate progress in achieving IEP objectives. Contact: Williams Syndrome WILLIAMS SYNDROME ASSOCIATION/CANYON REGION Open to all interested in Williams Syndrome. Contact: Diane Niles treemaker13@yahoo.com 8 communicator winter

9 CALENDAR of events Support Groups Fragile X FRAGILE X ASSOCIATION OF CALIFORNIA FRAXSOCAL, a parent-run support group Contact: Diane Bateman FRAGILE X CENTER OF SAN DIEGO 4653 Carmel Mountain Rd, Suites San Diego CA Contact: Carrie Murtagh , Military ARMED SERVICES YMCA EXCEPTIONAL FAMILY MEMBER (EFM) PROGRAMS Lincoln Management: Ext. 231 Camp Pendleton (South): Linda Shiebler Camp Pendleton (North): Adriana Pelaez Marine Corps Recruit Depot: Jan King MCAS Miramar: Deanna Angel Navy Regional Southwest: Chris Chase Talk Time: Elizabeth Wright Self-Advocacy SAN DIEGO PEOPLE FIRST Contact: Sibling AUTISM SOCIETY Imperial County Sibling Support Group Contact: SAN DIEGO REGIONAL CENTER North County Support Group for Siblings of SDRC Clients Contact: Jamie Michalski East County Support Group for Siblings of SDRC Clients Contact: Maria Lizaola Karen Ewalt South County Support Group for Siblings of SDRC Clients Contact: Rocio Ledezma or Joeanne Randall Support Groups General CRIMSON CENTER A parent-led support group for caretakers (parents, grandparents, adult siblings, etc.) Contact: Karyn Searcy EXCEPTIONAL FAMILY RESOURCE CENTER Parent Support Group For parents with children who have special needs. Contact: PASS (PARENT ADVOCATES SEEKING SOLUTIONS) Support group for parents of children 15 and over. Poway. Contact: Beverly Andreos PUZZLED PARENTS Resource and support group for parents of special needs children in East County. Contact: Amy Mello SAN DIEGO REGIONAL CENTER Alcohol and Other Drugs Support groups for adults with developmental disabilities who have substance abuse issues. Sponsored by San Diego Regional Center Recovery Task Force. Contact: FAADD (Filipino-American Association for Developmental Disabilities) Families come together to share experiences, information, and for social/recreational and emotional support. Contact: Maria dela Cruz marie.delacruz@sdrc.org First Friday Group Support, resources and peer guidance for parents who have children ages 12 and older. North San Diego County. Contact: Jamie Michalski jmichalski@sdrc.org SANTEE PEERS (Pride, Education, Environment, Relationship, and Self-Esteem) Social group in East County for clients ages 18 and older. Contact: Debra Jackson djackson@sdrc.org United Families Bilingual parent support group that educates and empowers parents/caregivers to make a difference in their child s outcomes. Contact: Joanna Herrera South San Diego County Maria Lizaola East San Diego County UNITED CEREBRAL PALSY ASSOCIATION Support Group for Siblings (age 8-13) of Children with Developmental Disabilities Contact: Rhonda VanEcklenburg communicator winter

10 Found a particularly useful website? svbishop@sdrc.org and we ll include it here. The Web Page As more and more of us are using computers as a source of information, there are many more websites that provide information about disabilities. Here is a sampling of useful websites you may want to visit USA.gov is the official Web portal of the U.S. government, have put together helpful information on how to get help for difficult financial times. Go to the usa.gov website and enter help financial into the search box and click on the title Help for Difficult Financial Times. The San Diego County Chapter of the Autism Society provides information and resources for parents. SDASA members include parents, relatives, friends, advocates, medical professionals and educators throughout San Diego County and beyond. Their mission is to improve the lives of all affected by autism by promoting meaningful participation and self-determination for individuals with ASD and their families. The mission of bridgingapps.org is to bridge the gap between technology and people with disabilities. They believe that it is more important to focus on the person who will be using the technology, rather than on the device itself. Visit here to learn more about technology can help people with disabilities maximize their potential. Disability.gov is the federal government website for comprehensive information on disability programs and services in communities nationwide. The site links to more than 14,000 resources. New information is added daily across 10 main subject areas Benefits, Civil Rights, Community Life, Education, Emergency Preparedness, Employment, Health, Housing, Technology and Transportation. The San Diego Down Syndrome Association assists in educating persons regarding children with disabilities, especially those with Down syndrome. They provide news, resources, blogs & other information for individuals and families affected by Down syndrome. The San Diego Committee on the Employment of People with Disabilities works to promote employment opportunities for persons with disabilities through community action, providing free training to businesses and collaboration with public and private organizations. Their website lists training opportunities and valuable resource information for both employers and people with disabilities. places you can access the web for free if you don t have a personal computer... Any San Diego or Imperial County Public Library OR Exceptional Family Resource Center did you know... Each San Diego Regional Center office has a Resource Room. Some are equipped with a computer with internet access. You can make an appointment by calling the appropriate office location. Not sure who to call? Contact your service coordinator. 10 communicator winter

11 Artículo de la Cubierta El Rey del Homecoming cuando supieron que Iván había sido nominado. Uno de sus compañeros dijo que Iván era merecedor de ese honor pues es muy sociable, amigable y se lo merece. Iván es un joven de 18 años con síndrome de Down. Siempre está feliz y tiene una sonrisa que ilumina todo a su alrededor; disfruta la música, el baile y las largas caminatas. El joven vive con sus padres y hermanos, a quienes quiere mucho, y además disfruta de su compañía. Iván es bilingüe (español e inglés), siempre quiere aprender cosas nuevas, y le encanta ir a la escuela. Iván es alumno de Crawford High School y es muy popular entre sus compañeros. Este año, tuvo el honor de que le nominaran para ser rey del Homecoming. Los otros posibles candidatos no quisieron postularse Iván sonríe orgullosamente cuando describe lo que esta nominación representa para él. Recibió su corona durante el medio tiempo del partido de fútbol de bienvenida de Crawford High School. Su reinado continuó hasta la noche del sábado cuando tuvo lugar el baile de bienvenida. Iván lució un esmoquin negro y dio la vuelta al campo de fútbol en un convertible, junto con la reina del evento, mientras saludaba a todas las personas que le aplaudían y que tenían pancartas que decían, Te queremos, Iván. Su sonrisa brillaba cual esplendoroso sol de California. Y esa noche, a bailar se ha dicho! communicator winter

12 Mensaje d e l D i r e c t o r Carlos Flores Director Ejecutivo Nuestro proceso de planeación estratégica no es un ejercicio meramente académico, sino algo crítico para la viabilidad de nuestra agencia y el cumplimiento efectivo de nuestra misión. Antes de dar el primer paso, es importante saber a dónde deseamos llegar. Durante épocas de dificultad económica e incertidumbre es todavía más importante que el camino sea claro. Mientras trazamos el curso y navegamos sobre terreno difícil, lo hacemos con una brújula estable y el propósito firme de cumplir nuestra misión: Servir y brindar apoyo a las personas con discapacidades del desarrollo y a sus familias, para que logren sus metas junto con sus socios en la comunidad. Comenzamos nuestra planeación estratégica con una evaluación objetiva de las debilidades y fortalezas del Centro Regional de San Diego, así como de las oportunidades externas y las amenazas a nuestro sistema. Enfocamos nuestras fortalezas de cara a las oportunidades, analizamos nuestras debilidades y amenazas externas, y determinamos tres directrices estratégicas: Identificar y comunicar los beneficios del Centro Regional de San Diego para ampliar y aumentar nuestra base de apoyo. Mejorar nuestra relación colaborativa con clientes y familias para proveer acceso a servicios y apoyos apropiados y de calidad. Poner un mayor énfasis en la capacitación de nuestro personal, así como en su desarrollo profesional. Durante el proceso, se le preguntó a las partes interesadas acerca de los beneficios que están asociados con el funcionamiento del Centro Regional de San Diego y pudimos captar el profundo aprecio que tanto los clientes y padres, así como los empleados, proveedores de servicios y socios comunitarios tienen hacia nuestro sistema de entrega de servicios. A raíz de estos reportes y otras fuentes de información, hemos generado un documento/informe que servirá de base para comunicar el valor del Centro Regional de San Diego. En una encuesta realizada recientemente a nuestros clientes y sus familias, se les preguntaba acerca de su nivel de satisfacción en cuanto a la calidad y lo apropiado del sistema de entrega de servicios que ofrece el Centro Regional de San Diego. Entre el 83% y 96% de los clientes y sus familiares contestaron que se les trataba con respeto y cortesía, que la información que recibían era relevante, y que sus Planes Individuales de Servicios Familiares y los Programas de Planes Individuales incluían servicios y apoyos muy valiosos. Basados en una encuesta reciente relativa a la satisfacción de los empleados, fortaleceremos nuestro desarrollo y capacitación profesional. Con el fin de asegurar que haya consistencia en las habilidades de nuestro personal, estamos creando un sistema de administración del aprendizaje que ayudará a proveer un programa integral de capacitación tanto en Internet como mediante instructores. En respuesta a las propuestas de ley del Presupuesto del Estado, nuestra siguiente meta importante es mejorar la calidad y disponibilidad de los servicios y apoyos para nuestros clientes de mayor complejidad, para los cuales históricamente ha sido más difícil encontrar los recursos que satisfagan sus necesidades. Los cambios recientes a las leyes y reglamentos han hecho que esta iniciativa sea más importante que nunca. A pesar de la incertidumbre, el Centro Regional de San Diego continúa desarrollando estrategias para contribuir cada vez más eficazmente a que las personas con discapacidades del desarrollo tengan una vida productiva y plena como miembros valiosos en sus comunidades. 12 communicator winter

13 La Fundación para Discapacidades del Desarrollo anuncia su campaña decembrina de recaudación NOS PODRÍA USTED AYUDAR? Al prepararnos a celebrar la temporada de fiestas decembrinas, debemos reconocer todos los dones que hemos disfrutado este año. También reconocemos las necesidades de otras personas que no han sido tan afortunadas durante estos tiempos de dificultad económica. La Fundación para Discapacidades del Desarrollo trabaja todo el año para proveer apoyo a niños y adultos con discapacidades intelectuales, parálisis cerebral, autismo, epilepsia y otras discapacidades del desarrollo con el fin de que vivan vidas productivas y plenas. Por ejemplo, la Fundación está trabajando para expandir las opciones de enseñanza superior de los individuos con discapacidades del desarrollo. En colaboración con UCP, el Centro Regional de San Diego, y la Junta del Área XIII, la Fundación brinda su apoyo al Programa College Bound, que ofrece capacitación para la vida universitaria a personas con discapacidades del desarrollo. Como bien dice Moisés Barón, instructor de la Universidad de San Diego: Este programa es único ya que provee a individuos con discapacidades la oportunidad de vivir la experiencia universitaria y aprender acerca de los servicios, los apoyos y las herramientas necesarias para alcanzar el éxito. Nuestra institución ha sido testigo de primera mano del impacto positivo de este programa en los participantes y sus familias. A muchos de ellos, este programa les ha permitido darse cuenta que una educación postsecundaria podría ser una opción viable para ellos. Uno de los padres comentó: No cabe duda que esta semana me ha abierto los ojos y me ha dado gran esperanza de que la educación superior es posible. Uno de los clientes participantes dijo: Agradezco la oportunidad de asistir a la universidad; aprecio mucho la oportunidad de poder asistir y aprender. Además, la Fundación continúa brindando asistencia que no se encuentra en otros lugares, de cara a necesidades importantes, urgentes y de emergencia, tales como la creación de oportunidades para encontrar vivienda de bajo costo, oportunidades de capacitación en temas de salud, seguridad, desarrollo personal y auto-abogacía, además de proporcionar becas para estudiantes que desean trabajar en el campo de las discapacidades del desarrollo en los condados de San Diego e Imperial. Esto es lo que dice uno de los becarios: Me sorprendí al recibir una beca de su organización y me sentí honrado; gracias por invertir en mi futuro; mi sueño es poder comenzar una carrera para ayudar a aquellos con discapacidades del desarrollo. Tenemos mucho que agradecerles, y por eso esperamos les agrade leer el gran alcance de las contribuciones que ustedes han hecho en el pasado. Su apoyo hace una gran diferencia en las vidas de niños y adultos con discapacidades del desarrollo y sus familias. Les damos las gracias y esperamos que cada uno de ustedes apoye a la Fundación con su donativo en estos días festivos. Llamen a nuestra oficina al (858) , o visiten nuestro sitio Web si necesitan más información o para dar un donativo. Si desean hacer un donativo con cheque, háganlo pagadero a FDD, y envíenlo a: Attn. Foundation for DD, 4355 Ruffin Rd., San Diego, CA Agradecemos su apoyo! Fundación para Discapacidades del Desarrollo 4355 Ruffin Rd. San Diego, CA La Fundación para Servicios de Desarrollo de los condados de San Diego-Imperial es una organización no lucrativa 501(c)(3) y sus contribuciones son deducibles de impuestos de acuerdo a lo permitido por la ley. La Fundación está buscando algunos voluntarios a los cuales les gustaría ser miembros de la Mesa Directiva. Si usted está interesado, por favor comuníquese con nosotros: Foundation for Developmental Disabilities 4355 Ruffin Road, San Diego, CA (858) communicator winter

14 Prevención de incendios durante la temporada de fiestas La prevención de incendios es especialmente importante durante esta temporada de fiestas. A continuación le damos algunos consejos para que su familia esté segura y disfrute las fiestas. PREVENCIÓN DE INCENDIOS DE ÁRBOLES DE NAVIDAD Peligros de incendio con árboles naturales: Es necesario tomar ciertas precauciones cuando se tiene un árbol natural en casa. Cuando un árbol se incendia, el fuego rápidamente se propaga y la habitación se llena de gases peligrosos. Al escoger su árbol, asegúrese de que las agujas del pino estén verdes y que no se desprendan fácilmente. Las agujas del árbol no se deben quebrar si el árbol está fresco y recién cortado. El tronco debe sentirse pegajoso al tocarlo. Si usted nota que se caen muchas agujas, quiere decir que el árbol ya lleva cortado mucho tiempo, está seco y podría causar un incendio. No coloque su árbol cerca de una fuente de calor, pues esto hará que se seque más rápido y se queme. No coloque el árbol con demasiada anticipación y tampoco lo deje puesto por más de dos semanas. Mantenga el recipiente de la base lleno de agua en todo momento. Si su árbol de Navidad es artificial o de metal, asegúrese de que sea resistente al fuego. LUCES DECORATIVAS Dé mantenimiento a sus foquitos: Inspeccione sus series de foquitos cada año para asegurarse de que los cables no estén dañados. Utilice solo aquellos foquitos con sello de aprobación de laboratorio. No conecte demasiadas series en un solo enchufe eléctrico: Conecte las series a una extensión y de ahí al enchufe. Revise bien los cables, no deben sentirse calientes al tocarlos. No deje prendidas las series si no va a estar en casa. DECORACIONES Utilice únicamente decoraciones no inflamables: Todas sus decoraciones deben ser no inflamables o resistentes al fuego, y deben colocarse lejos de chimeneas, velas o salidas de calefacción. Nunca ponga en la chimenea papel para envolver: el papel para envolver es extremadamente inflamable y puede ocasionar un incendio rápido que arroja brasas y chispas peligrosas. CUIDADO DE LAS VELAS Si usted usa velas, asegúrese de que estén colocadas en portavelas estables, donde no se puedan caer fácilmente. Nunca deje las velas prendidas si no va a estar en casa. Nunca ponga velas encendidas en el árbol: los árboles de Navidad (tanto naturales como artificiales) pueden incendiarse fácilmente. Finalmente, al igual que en cualquier temporada del año, asegúrese de que su detector de incendios esté funcionando adecuadamente y tenga baterías nuevas o con suficiente carga. Sepa cuándo y a dónde pedir ayuda en caso de necesidad. Además, recuerde tener y practicar su plan de escape. Coma saludablemente durante las fiestas La temporada de fiestas se acerca rápidamente. Los días son más cortos, salimos de casa menos y no somos tan activos. Además, tendremos fiestas, cenas y otros eventos sociales. Es fácil subir de peso durante esta temporada. Recuerde que usted tiene control sobre lo que ingiere y sobre sí mismo. Es más fácil mantenerse en su peso que tratar de reducir su línea más adelante. x Aquí le damos unas sencillas sugerencias para comer más saludablemente este año. Lo primero es comer refrigerios, pero en vez de comer una barra de chocolate, mejor coma unas minizanahorias o un pedazo de fruta. Si come pequeñas porciones frecuentemente, evitará tener antojos que le lleven a comer impulsivamente. Antes de salir a un evento social, coma algunas verduras, también puede tomar agua para tener una sensación de saciedad y resistir el impulso de comer. x Sea consciente de lo que está comiendo; esto le ayudará a comer más lentamente. El estómago se tarda en comunicar al cerebro que ya está satisfecho. Si se concentra en lo que está comiendo y mastica bien la comida, usted se sentirá más satisfecho y sin necesidad de comer más de lo necesario. x Si come en la calle con frecuencia, generalmente es fácil consumir muchas calorías en una sola comida. Recuerde que comer no es una competencia para ver quién come más rápido o más cantidad. x Cuidado con los alimentos altos en calorías (dips, papitas, quesos, salsas, jugo de carne, dulces, jugos de frutas, bebidas alcohólicas y nueces). Recuerde de controlar también sus porciones, divida su plato en cuatro: un cuarto de plato para cada grupo alimenticio proteínas, granos, vegetales y frutas. También puede consumir una porción de algún producto lácteo. x No se sienta obligado a servirse más o a dejar su plato limpio. Coma hasta que quede satisfecho, y pare. La gente respeta a aquellas personas que saben controlarse a sí mismas, incluyendo sus hábitos alimenticios. A la larga, usted estará más contento consigo mismo y su salud se beneficiará. 14 communicator winter

15 haga un plan para un mejor mañana La organización Home of Guiding Hands está ofreciendo una serie de talleres para padres y familiares de personas con discapacidades del desarrollo y otros retos. El Proyecto de Planeación de Vida: Una serie de talleres para la familia, consiste de seis talleres: Por qué planear? Cómo comenzar, Cómo forjar relaciones y desarrollar habilidades, El retiro y el descanso, Opciones de vivienda, Cuestiones legales, y Cómo establecer objetivos. La serie, que incluye los seis talleres, se ofrecerá en diversas áreas, incluyendo el Condado Este, el Condado Norte, y South Bay. En South Bay, la serie se ofrecerá tanto en inglés como en español. Posteriormente en el otoño del 2013, la serie tambien se ofrecerá en el Condado de Imperial. Es necesario hacer reservaciones pues el cupo es limitado. Comuníquese con Wendy escribiendo a wendy@guidinghands.org o llamando al Grupo de teatro y canto para adolescentes y adultos Aparte las fechas! 23 DE MARZO, 2013 El 30 vo Congreso Anual para Padres Excepcionales Involucrados Handlery Hotel, San Diego El poder de la colaboración: Cómo forjar relaciones más fuertes en el hogar y la comunidad Los talleres se ofrecerán en inglés y español. Contacto: Sonia Griffin, sonia.griffin@sdrc.org 10 a 12 DE MAYO, 2013 Congreso de Autoabogacía People First de San Diego, Mission Valley Marriott People First de San Diego: Ayer, Hoy y Siempre Contacto: Debbie Marshall DE JUNIO, 2013 La Fundación para Discapacidades del Desarrollo presenta: Run Walk & Roll Liberty Station, San Diego Contacto: Kamaria Allen, kallen@sdrc.org Centro de Tecnología Asistencial 6162 Mission Gorge Road, #F San Diego CA ~ (fax) Correo electrónico: sdatc@ucpsd.org HORARIO DEL LABORATORIO ABIERTO Durante las horas de operación del Laboratorio Abierto, las personas pueden explorar diversos aparatos de comunicación aumentativa, software, y equipos de acceso alterno a computadoras. Debido al número elevado de participantes, la ayuda individual del personal técnico es limitada. Para información de horarios en el Condado Norte (Escondido), llame al La organización Positive Action Community Theatre (PACT) enseña habilidades para la vida mediante programas de artes teatrales dirigidos a niños, adolescentes y adultos. Las ocho sesiones de invierno se llevarán a cabo en Encinitas y comenzarán el sábado 19 de enero del 2013; incluyen improvisación teatral para adolescentes y adultos, así como un nuevo grupo de canto para adolescentes y adultos. Además, PACT ofrece un programa de teatro para niños durante el verano. Todos los programas incluyen una mezcla de participantes con y sin discapacidades. Hay becas disponibles. De acuerdo a PACT, los comentarios de los papás es que estos programas ayudan bastante a que niños y jóvenes con discapacidades salgan de su aislamiento, encuentren su propia voz y compartan sus talentos. Sin duda, todos nos beneficiamos. Para más información: info@pacthouse.org En nuestra comunidad hay una gran diversidad de actividades recreativas y sociales para niños y adultos con discapacidades del desarrollo; pero encontrar estos recursos puede resultar difícil. A los coordinadores de servicios con frecuencia se les informa acerca de diversas actividades a disposición de nuestros clientes, pero no siempre es fácil correr la voz a toda la gente. El Comité de Recreo y Descanso del Centro Regional de San Diego se complace en anunciar un nuevo proyecto que facilitará a un público más amplio el acceso a esta información. A partir de enero del 2013, usted podrá encontrar en nuestro sitio Web una recopilación de actividades sociales y recreativas. Simplemente visite Recreo y descanso en el sitio Web del CRSD el sitio y, bajo la opción del menú titulada Resources & Support, haga clic en Recreation. Cada tres meses actualizaremos la lista con entretenidas actividades que se ofrecen en la comunidad. Actualmente si usted visita esta página, encontrará enlaces a una Guía de Recursos Recreativos tanto en inglés como en español, calendarios para nuestros Grupos de Redes Sociales para Adultos en San Diego Central y el Condado Este, y un enlace al Calendario de Servicios Terapéuticos del Departamento de Parques y Recreo de San Diego (actualizado trimestralmente). Nos complace poder recopilar toda esta información en un lugar de fácil acceso para nuestros clientes! communicator winter